Tag Archives: diabetes

From hospital room to stateroom

3 May

My 2013 was pretty great until August when it sunk into fear and loathing in hospitals. As a result of the clarity that emerges from losing control of situations, I began 2014 with a renewed focus on how lucky my unlucky August actually was. Even worse than last year, it’s halfway through 2014 before I’m publishing this reflection. I am nothing if not inconsistent. Here are three things that happened right when the current school year started:

1. NOT ROUTINE SURGERY, Part One

It was mid-August. Our bedroom was draped in blankets and sheets to buffer the echo of our terrazzo floors. Aaron was talking to the producer of the Judge John Hodgman podcast prepping for us to go live. About an hour prior, I had talked to my mom about my dad going in for hip replacement surgery. They were expecting him to wake up four hours later. She would call me then. Only an hour and a half later, my phone lit up with the words “Mom.” I stepped out of the pre-taping sound check to take the call.

My dad had stopped breathing and they’d sewn him up mid-surgery and rushed him to ICU. My mom was alone at the hospital, the promise of routine surgery now broken along with Dad’s hip. I was 1000 miles away about to tape a podcast about an egg chair. Mom told me she’d call me when the doctors came back to report his progress. I could sit there and imagine the worst or continue with the taping. I walked outside and took several deep breaths and said my first honest prayer in a long time. Fifteen minutes later I was explaining to John Hodgman why I didn’t think a 70’s era pod chair belonged in our living room.

Sixteen hours later I was on a plane to visit my dad in ICU.

Twenty-four hours later I listened to the podcast with my dad in his hospital room. He thought it could use some editing.

One week later, my dad was recovering at home after a successful second surgery.

Five months later,  that pod chair was in our third bedroom. IMG_2100

2. NOT ROUTINE SURGERY, Part Two

At the end of August, one week into my new classes, Aaron woke me up with severe abdominal pain. Within minutes, I was driving half-asleep to the nearest hospital. After an educational middle-of-the-night ER experience that our nurse friend later described as working in the back of a restaurant (completely accurate comparison), a doctor told Aaron he had appendicitis and would be sent to surgery as soon as possible.

At this point we could definitely rule out Aaron’s previous fear that this was just SEVERE GAS.

Early the next morning and a couple of narcotic doses later, Aaron was asleep and I was operating on one hour’s sleep. They moved us to a holding room prior to surgery. I notified our families of the situation and became so tired that I finally crawled into Aaron’s hospital bed with him and took a nap like two cats in a hammock.

Surgery to remove Aaron’s vestigial appendix proceeded normally and we hoped to be home by the next day.

Instead we logged close to a week in the hospital because of the internist’s poor management of Aaron’s type I diabetes post-surgery that led him into Ketoacidosis (DKA).

Without going into the details of the poor care Aaron initially received after surgery, I choose to focus on the excellent care he received when the hospital moved him to more capable nurses and doctors in the IMCU. The surgeon was amazing–in fact, it was her phone call to me in the middle of Aaron’s DKA that got action taken to move him. She had the direct and gruff manner of a surgeon, and was not popular with the nursing staff, but that’s exactly what we needed right then. Someone to take us seriously and cut through the red tape.

I finally resorted to rolling my eyes at the doctor who caused Aaron’s decline, yet continued to defend his actions and treat Aaron as some kind of anomaly. It was a strong reminder of the importance of admitting when you are wrong. That’s been difficult for me to do in the past, and this doctor was young.

Hey doc, the one thing that could have made us feel better about your wisdom being consumed by confidence (to borrow from Julius Caesar) was for you to apologize. At least for what happened to Aaron. I know you see admitting mistakes as permission for us to sue you, but honestly the more you insisted you were right, the more we wanted to punish you.

Aaron’s doctor didn’t listen to him when he expressed his concerns over how his diabetes was being treated. Aaron lives with the disease every day; he understands it better than a doctor.

In an interview with Marc Maron, comic actor and former doctor Ken Jeong (best known for The Hangover and Community) said the most important thing he learned about practicing medicine was to listen carefully to his patients. That internist hadn’t learned that yet. He was still in the “I must project that I am right at all times” phase of not knowing what he was doing.

Our surgeon was the first to tell us when she didn’t know why something was happening. She was blunt with the staff, but she never feigned knowing. She took action to find out instead. That is a trait I admire. (Mostly because younger me did not possess such a trait.)

I realize that should make me feel sympathy for the internist, but NO. *Rolls eyes just thinking about it.*

That week in the hospital feels like a distant place, a pin on the map during a long road trip. Only this pin shredded most of the paper and stabbed us first.

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3. NERD CRUISE

Two weeks after Aaron was discharged from the hospital, we hopped a cruise ship at the Port of Miami and headed for the Bahamas for a long weekend. We booked this getaway long before hospital August, so at the beginning it felt like another thing to endure.

This looked exactly like the cruise we took two years ago. Same port. Same boat. Same destination. Only this time there was a significant faction of cruisers who all listen to the same podcasts. Enjoy the same music. Laugh at the same comedians. It was the Atlantic Ocean Music & Comedy Festival, and they’re doing it again in July if you’re into nautical irony.

The rest of the boat featured typical cruisers. You saw an extended family reunion, a lady wearing a mesh dress, a man forever shirtless, etc.

It was fairly easy to pick out the nerd cruisers with their graphic tees and Warby Parker glasses. Aaron and I looked more like native cruisers with our “we live in the tropics” maxi dresses and guayaberras, so I think we proved a challenge to diagnose.

On our first cruise, we only lasted one night in the main dining room. Our assigned tablemates were a pair of 21-year-olds on their honeymoon and a regular-cruising French Canadian couple in their 60’s who could only talk about motorcycles or nothing at all. Awkward was served with every course.

We fled to the Windjammer the next three nights to gorge ourselves at the buffet instead.

On the nerd cruise, table conversation flowed as freely as the cultural references. We all knew what we had in common before the bread came. And we all had the same reaction to formal night when the entire wait staff stopped service to sing and dance.

“Nobody wants this.”

Instead of choosing between the juggling comedian and salsa lessons, this time we got a private show of comedians and musicians we would pay to see separately, all on one bill. Three nights of talented and hilarious performers who happened to also be nice, generous people.

I still couldn’t deal with swimming in the Caribbean next to people I used to watch on TV. I turned around and Daily Show alum Wyatt Cenac was a few feet from my face. *Just keep swimming, just keep swimming…*

But we did meet John Hodgman the first night and because of his brief involvement in our life at the start of this triology, it was a welcome weirdness. Though he plays a snooty, eccentric billionaire on TV, in person he’s incredibly genuine, despite what this photo implies.

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And this is where I leave you. John Hodgman was with me in the middle of a horrifying moment (though he doesn’t know it), and was on the other side of a second one.

All on a giant ship in the middle of the ocean.

We lived life through a porthole window last fall and it’s just the right amount sometimes. It taught me not to worry about the entire ocean and chart the course at hand.

It also taught me to use nautical cliches.

There are always side effects.

 

You have to live it to get it

15 Feb

I live in South Florida, bad driving capital of the South. Conventional wisdom says it’s because of the influx of drivers from other places who’ve all learned to drive under different rules. Or sometimes no rules at all. Despite its dangers, I walk places as frequently as possible, including the grocery store across the street. The other day I was doing my daily cross-the-street maneuver with permission from the “walking man” street sign. As I walked in front of impatient drivers stuck at red, three different cars turning right into to my path (with “green” lights) attempted to run me over. They gave me “the NERVE of YOU!” looks as they slowed down to avoid vehicular manslaughter. I gestured at the pedestrian walking man to prove my rights. They were not concerned. It was all about them getting where they’re going as fast as possible. The only thing that would change that is if they were in that crosswalk with me as 1500 lb. boxes of metal lunged at them with no apologies.

But they likely never walk anywhere, so that perspective shift may never happen. And thus the cycle of impatience and blame will continue.

Nothing truly matters to us until if affects us personally. We might think we empathize with others, but we don’t actually get it until it lives with us every day. This is the strange position politicians are in–trying to solve problems they don’t fully understand.

I know how expensive healthcare is for small businesses because my dad owns a small business of himself and two employees. I also know how grateful he is to finally be on Medicare. For the period of time I had a “pre-existing condition” and paid insurance out-of-pocket while in graduate school, I realized how high the burden would be if I had a family to support as well. But since knowing and living with my type I diabetic husband, I finally GET IT. Even though he works for a major university with group health insurance, he still battles with the  insurance company every six months to maintain his insulin supply. Every time he bargains over how the insulin will be delivered, and how much they will or will not cover, I cringe. I also realize that I’ve been sheltered from the reality of our healthcare crisis. I’ve never had a permanent disease that will result in death if I don’t get medication. It’s one thing to read about it–it’s quite another to watch the love of your life stress over whether or not he’ll have to pay $250 more per month to NOT DIE.

In a similar vein, I recently learned that merit pay for teachers (at least the way the state of Florida is going to implement it) is purely a political move. The “reward good teachers” promise made at the stump is great lip service for politicians making deals with education specialists and testing companies. The way our pay scale was presented to us through a district training is that 6%-89% of teachers will be rated “Effective.” So only those in the 90-99th percentile are even eligible to earn the coveted rating of “Highly Effective,” the only rating that earns you a raise. How that raise is determined is based on 60% teacher instructional practices (as determined by a model sponsored by a paid education consultant) and 40% student achievement. It’s how the 40% is determined that will make your head spin. My district is going to implement this plan before they have standardized tests for every subject. This means that if you teach a subject or grade level that doesn’t have a state test yet, then your 40% will be determined by the school grade (in Florida we get graded A-F based on test scores, attendance, enrollment in upper level classes, etc.)

Yes, you read that correctly. You could be a highly effective theater or Spanish teacher who doesn’t get a raise because you teach in a high-needs school whose grade is a C or lower. Where’s your incentive to teach in a high-needs school? Where’s your incentive to look out for anyone but yourself?

I’ve been coping with a lot of guilt over not wanting to teach anymore. When I got laid off I was a little relieved because it forced me to find out my new path. Then the fear of not having a job took me over and when I was offered a position a few months later, I was temporarily excited. You know, “grateful to have a job.”

Only after several weeks, I wasn’t so grateful. Hello, guilty, my old friend…

It wasn’t until this year that I experienced real burn out with classroom teaching. This is my second year of all-classroom teaching and no advising. Deep down I knew the advising (although with its own stress) kept me from cascading into the reality that as much as I tried to convince myself that public school education is my lifetime calling, I’m not sure that it is. I think it was for a decade, and I wouldn’t trade those years for anything. And I’m not even saying I’ll never go back.

In addition to lacking a creative outlet at work, this year I ended up with a schedule of mostly low-level freshmen during a year when class sizes went through the roof. Everything going out, and very little coming in. Ending your day with 38 boisterous ninth graders who are only in your “journalism” class because they didn’t sign up for history feels more like corralling than teaching. That wasn’t even my worst class last semester.

Fight or Leave

If I knew I wanted be a classroom teacher for 19 more years, I’d be much more prepared for the fight that will likely continue for another five years (or however long it takes people to realize one-size fits all standardized testing is not the answer). Instead I’m battling a serious ultimatum, because teachers who stay will have to fight. And fighting for what you’re not sure you want to do anymore feels awkward. And it’s not fair to my colleagues who know this is their life’s work, the ones who deserve more money and better treatment. Instead this War on Teachers will give them uncertain, irregular pay that is determined by too many factors they can’t control. Don’t believe the hype that merit pay will allow us to fire bad teachers and keep good ones in the profession in order to boost student achievement. This is something I once would have agreed with because the kids motivated me. However, after all the research I’ve read and especially now that I’ve seen how the fourth largest state plans to implement merit pay, I see it for the political ruse that it is. I laugh now when I think how Michelle Rhee was on to something when she said that the problem with education isn’t the kids, it’s the adults.

The kids are always going to make it hard on teachers: that’s their job. When the adults decide it’s their job to make it even harder by micromanaging the minutia of their classrooms, it leaves many teachers with little left to give to the kids. It’s like drinking hot coffee with a perpetual burnt tongue and then being asked to smile as the district and state pour an entire pot into your face. “Teach on!”

When people try to dissect your craft into too many pieces, it stops feeling like it’s yours anymore. It feels more like a Skeksie draining a Gelfling of its essence. And this Gelfling is in a Dr. Seuss-esque slump.

“And when you’re in a Slump, you’re not in for much fun. Un-slumping yourself is not easily done.

You will come to a place where the streets are not marked. Some windows are lighted. But mostly they’re darked. A place you could sprain both your elbow and chin! Do you dare to stay out? Do you dare to go in? How much can you lose? How much can you win?

And if you go in, should you turn left or right…or right-and-three-quarters? Or, maybe, not quite? Or go around back and sneak in from behind? Simple it’s not, I’m afraid you will find, for a mind-maker-upper to make up his mind.”

–Dr. Seuss, Oh, The Places You’ll Go